Kom op tegen Kanker advocates tailor-made rehabilitation for patients with brain tumors

In patients with a brain tumor, rehabilitation should ideally begin during treatment, so that they remain more stable. From the testimonies of the annual report of the Kankerlijn van Kom op tegen Kanker, it appears that patients with brain tumors are not offered a rehabilitation program at all.

Patients with brain tumors or metastases can experience loss of strength, sensory disturbances, and paralysis, but also concentration problems and behavioral changes. For these patients, it is important to start rehabilitation not after treatment, but during treatment. This prevents their physical and cognitive condition from deteriorating significantly. At the moment, this rehabilitation program is almost not offered, because it is difficult to combine chemotherapy or radiotherapy.

Lia Le Roy, president of the Brain Tumor Patients Association: “I often talk to patients (or their caregivers) who have cognitive problems, but haven’t started rehab yet. Refer them to their therapist for rehabilitation. Rehabilitation truly improves patients’ quality of life.

Start the individual rehabilitation process in time

Kom op tegen Kanker requires the relevant authorities that cancer patients with brain tumors or brain metastases take part in a rehabilitation program tailored to them, in which they receive physical, cognitive and psychosocial rehabilitation. If this is possible for them, it should also be possible when they are still receiving chemotherapy or radiotherapy.

Annemie Mees, social assistant in medical oncology at UZ Leuven day hospital: No patient with a brain tumor is the same. They all have different needs and requirements, with or without the support of caregivers. That’s why you need to start from the person’s point of view and find out which rehabilitation process suits him best in order to maintain a good quality of life during treatment.

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Stand Up Against Cancer advocates the following:

  • The attending physician at the hospital, along with the multidisciplinary team, evaluates the rehabilitation that a patient with a brain tumor needs as soon as possible. Depending on the need for rehabilitation and in consultation with the patient, the patient can rehabilitate at his own pace in the hospital or begin rehabilitation in the home environment.
  • Cancer patients with brain tumors or brain metastases can begin a tailored rehabilitation program where they receive physical, cognitive, psychological and social rehabilitation. They can combine this path of rehabilitation with the course of oncology and should receive appropriate funding.

Patient associations Werkgroep Hersentumoren vzw and Brain Injury Liga vzw support this call.

Patients with brain tumors or metastases can experience loss of strength, sensory disturbances, and paralysis, but also concentration problems and behavioral changes. For these patients, it is important to start rehabilitation not after treatment, but during treatment. This prevents their physical and cognitive condition from deteriorating significantly. At the moment, this rehabilitation program is almost not offered, because it is difficult to combine chemotherapy or radiotherapy. Lia Le Roy, president of the Brain Tumor Patients Association: “I often talk to patients (or their caregivers) who have cognitive problems, but haven’t started rehab yet. Refer them to their therapist for rehabilitation. Rehabilitation truly improves patients’ quality of life. ”Com op Tejen Kanker is asking the relevant authorities that cancer patients with brain tumors or brain metastases take part in a specially designed rehabilitation program where they receive physical, cognitive, psychological and social rehabilitation. If this is possible for them, it should also be possible when they are still receiving chemotherapy or radiotherapy. Annemie Mees, social assistant in medical oncology at UZ Leuven day hospital: No patient with a brain tumor is the same. They all have different needs and requirements, with or without the support of caregivers. That’s why you need to start from the person’s point of view and find out which rehabilitation process suits him best in order to maintain a good quality of life during treatment. Kom op tegen Kanker calls for: Patient associations Werkgroep Hersentumoren vzw and Brain Injury Liga vzw support this call.

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Megan Vasquez

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